good news bad news day

Very much up and down. Most of the down was not serious and the serious ones are not as serious as what they could have been.   So I saw my surgeon today. I do need surgery but probably not as intensive as it could be! That’s the good news. The bad news is that…

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still no photos

Also today was spent mainly reorganising. I have a bee in my bonnet to make a particular frock and I realised I have tossed the very helpful strip of saree border that would have helped. Anyway. I am dedicated to this project! But I have also made huge headway elsewhere- the Ahsoka cast is not…

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A very good day

Today was actually quite magnificent really. Found another big pink storage container- slowly getting a few as my bucket system is great for trims etc but most projects atm are BIG! So after that I picked up two pairs of shoes from savemart as well as a sofa cover in faux suede, but the satinbacked…

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gaming limitations

I have tenosynovitis right across both hands, a result of Rheumatoid Disease. My ulnar has shifted to sit on top of my carpal bones as well. This is obviously fairly catastrophic over time but with splinting and therapy I should be able to get more use before limiting surgery. I need to take care of my…

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kindness part 2

I hoped I would not have to update this so soon. I recently shared how upset I was at my limits, not just of my body, but of what my reality is in terms of treatment. I was responded to with being told what to do, with the overt suggestion that I hadn’t already exhausted my…

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Rheumatoid life

Fatigue edition. I occasionally realise that people don’t experience pain in the same way, let alone experience different types of sources of pain. There are also different kinds of tiredness so that it can be hard to understand when someone with a fatigue symptom can appear to be okay. Tonight I was supposed to go to…

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SICK

SICK by admin, December 19, 2014 Well the term was used at hospital, even if I feel uncomfortable with it.  But yeah, it is chemo- fewers doses c.f. MTX but still. So my reactions are delayed the not-fever, nausea, and malaise, Ice, kids pamol (to reduce pain and fever) ice and my own still needed…

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