summer cleaning

or delayed spring cleaning, I decided that as I have too many obsessive projects on the go I needed to just tidy up my workspaces as well as get rid of projects I no longer think I can finish. It’s very warm right now and my health has suffered so much this year that I…

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My poor blog!

I’ve been doing things, just posting through instagram as it’s an easy app. to use on my itty bitty phone, it can cross post (can’t be crossposted to, which is annoying) so there is a fair bit of backlog! Before I do a few updates on the state of the current projects I need to get…

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inspiration hit hard!

Over the last few days I have been quiet here as I have been a bit busy and tired in what feels like equal proportions! It’s been skewed more to tired, strangely enough. Though I have four events and two hospital daystays in the next month so yes still to being busy. All charity events btw. Tis…

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that latest therapy

  The media hypes up medical advances as much as anything, in fact often even more. And those of us with chronic illness are often caught between the hype and people who care about us as well as people wanting to be the first to share. It is exhausting. Because I am indeed always searching for information…

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holding pattern day

Well, sort of. I mean I had a specialist appointment today- which is pretty much treading water. Kind of, so do you want to have daily steroids again? Do you want to double your current medication? Okay do you want to go on another medication that will mean you need to see an ophthalmologist regularly? I have…

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Serious health post

I realise that I write about my health a lot, but my disease has such a misleading name, and has caused confusion for patients with RA and with OA that I think I need to try and clarify just why I am on drugs used in Chemotherapy and to treat disease people think of as…

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getting there

My Marie Antoinette hoops are slowly taking shape. I finally managed a pattern though, so if I have to redo this I have a guide. Yes, there are finally tape channels sewn in! And even more plumber’s coil/drain snake.I finally got the internal tapes to a position that works, and the tape is all hemmed….

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Health update

In my last post I mentioned, almost offhand, I make while I can still make. I’m having this tested somewhat as the fatigue that has dogged me for so long returns after a short few weeks. I am sort of okay with this. I know what to expect, I know I can pace things out,…

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Not too well

Not too well I went to the mall last night, on  a big ass straw search so I do not panic in the alginate, and too look for perfect shoes to make over for Battle Maleficent (so many terribly designed shoes- I have a high instep but a mid level arch and if my arch…

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